Advancing the Evidence of Experience: Practical Issues for Patient/Consumer Inclusion
On March 6, 2008, The National Working Group on Evidence-Based Health Care hosted a live webcast addressing activities/strategies that promote patient/consumer inclusion in designing and prioritizing research, reviewing evidence, and contributing to its translation, dissemination, implementation, and evaluation.
Download a copy of the Forum proceedings (pdf) or view the session webcasts below.
Agenda & Presentations
Overview: Share information and ideas with Working Group affiliates and other patient and consumer representatives and advocates about opportunities for engagement along the evidence-based healthcare continuum. Build a foundation for the Working Group’s Common Themes for Consumer/Patient Inclusion.
Welcome and Opening Remarks
Including the Voice of the Patient/Consumer: A Broad Overview of Current Efforts
Panel Objective: To highlight the various programs, initiatives and steps that have been adopted to better include and protect patients and consumers.
Clear Messages: Importance of Information Sharing, Translation and Dissemination
Panel objective: To illustrate how organizations practice information-sharing and dissemination, and to highlight the importance of appropriate research application.
Building Patient Preference into Research Agendas
Panel objective: To illustrate what consumer/patient inclusion means within clinical research, highlight opportunities to impact research, and discuss new paradigms for patient and consumer involvement. Specific topics include: research topic prioritization, designing research that focuses on outcomes meaningful to patients, consumers and providers.
Developing Patient-Centered Research
Comparative Effectiveness Policy Debate: Opportunities for Patient and Consumer Involvement
Panel Objective: To provide perspective on current policy climate around evidence-based health care and the role that the patient or consumer can play in that context
Overview: Build from Day One’s discussion and from the Working Group’s "Principles for Patient and Consumer Inclusion" to outline how patients and decision-makers can apply the principles to meaningfully impact policy and programs.
Welcome and Review of WG Patient/Consumer Inclusion Principles
From Information to Implementation: Putting Individuals back into Healthcare Decision-making
Panel objective: Identify methods of interpreting research findings for coverage decisions, weighing the pros/cons, risks and benefits for implementation with a patient/consumer focus.
5 min overview from each panel member "how you are doing this in your system?" facilitated discussion and 15 min Q & A
Evidence-Based Healthcare Panel: Linking Comparative Effectiveness to Quality Improvement
Panel objective: To foster thoughtful discussion about where evidence-based healthcare is headed, how consumers / patients, regulators and decision-makers can foster success and mitigate challenges.
Concluding Summary on Common Themes & Adjourn