Participating Organizations

The AIDS Institute

Alliance for Better Medicine

Alzheimer’s Association

American Association of People with Disabilities

American Chronic Pain Association

American Diabetes Association

American Health Source

American Pain Foundation

American Psychiatric Association

American Society of Consultant Pharmacists

Arthritis Foundation

Asthma and Allergy Foundation of America

California Chronic Care Coalition

California Hepatitis C Task Force

The Carter Center

Children and Adults with Attention-Deficit/Hyperactivity Disorder

Easter Seals

Epilepsy Foundation

FAIR Foundation

Food and Drug Administration, Office of Special Health Issues

Interstitial Cystitis Network

The Jonathan O. Cole Mental Health Consumer Resource Center

Latino Health Advocacy Coalition

Leukemia and Lymphoma Society

Lupus Foundation of America

Men’s Health Network

Mental Health America

National Alliance for Caregiving

National Alliance on Mental Illness

National Association For Continence

National Association of Hepatitis Task Force

National Association of Mental Health Planning and Advisory Councils

National Association of Social Workers

National Coalition for Cancer Survivorship

National Council for Community Behavioral Healthcare

National Health Council

National Kidney Foundation, Inc.

National Medical Association

National Sleep Foundation

Parkinson Pipeline Project

Salud Latina/Latino Health

Society for Women’s Health Research

Veterans Health Council

Vietnam Veterans of America

Resource Download:

The Role of the Patient/Consumer in Establishing a Dynamic Clinical Research Continuum PDF

In addition to the Call to Action and forum, the Working Group identified organizations that engage patients/consumers in conducting research. These organizations highlight a variety of paradigms and best practices for gaining the patient/consumer perspective in research. In an effort to inform policymakers and organizations conducting research on including patients/consumers in EBH, this paper highlights organizations engaging patients/consumers in research.

Achievements:

National Working Group on Evidence Based Health Care Gathers Leaders For Dialogue on Restoring Patient Voice in Healthcare Decision-Making

A two-day forum brought together healthcare policy-makers, researchers, healthcare providers, payers, and patient and consumer advocates for an open dialogue on the role of patients/consumers in all aspects of the evidence-based healthcare process. Full reports on forum themes and proceedings and a video webcast of both days, is now available...

 

Vision:

The National Working Group on Evidence-Based Healthcare: Keeping Science Relevant to the Individual. Ensuring appropriate evidence-based healthcare policy through education and advocacy.

Webcast

Latest News

Jun-30-2009
Federal Coordinating Council for CER Report to the President and the Congress

Important Dates

Mar-01-2007
National Working Group on Evidence-Based Healthcare Monthly Conference Call

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Consumer Forum
Consumer Forum presentations & audio

 

 

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